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Publication: A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy

This research article, published in the Journal of Patient Reported Outcomes, describes the development of a conceptual model of the impact of nonsense mutation Duchenne muscular dystrophy (nmDMD) on caregivers, based on interviews with parents of patients with the condition

  • Review the methods used to conduct a qualitative study, interviewing 10 parents of patients with nmDMD
  • Explore the results evaluating the impact of nmDMD on caregivers of patients with the condition
  • Learn about a conceptual model to show the impact of caring for a patient with nmDMD, including social, emotional, physical, time, work, and relationship burdens

Williams K, Davidson I, Rance M, et al. J Pat Rep Outcomes. 2021;5:71

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